CARS-2: Administration, Scoring, and Interpretation for Autism Spectrum Disorder Evaluation
ECMS PEDIATRIC TRAININGS
Summary:
This video provides a detailed guide on the administration and scoring of the Childhood Autistic Rating Scale, 2nd Edition (CARS-2), for diagnosing Autism Spectrum Disorder (ASD). Key points include:
- CARS-2 is a diagnostic tool, not a screening tool, used to categorize autism severity (mild, moderate, severe) and correlates with DSM-5 functional criteria.
- The scale comprises 15 items, each rated on a 1-4 scale (with .5 increments) based on direct observation and caregiver input.
- Ratings consider the peculiarity, frequency, intensity, and duration of observed behaviors.
- Scores from the 15 items are totaled to determine a raw score, which is then mapped to T-scores and percentile ranks.
- The total raw score helps classify the child into three functional levels of autism as per DSM-5: requiring support (Level 1), requiring substantial support (Level 2), or requiring very substantial support (Level 3).
- The lecture uses a case example of a 4-year-old child to illustrate the scoring process for several key items.
Introduction to CARS-2 [00:01:23]
- The Childhood Autistic Rating Scale (CARS) is a diagnostic tool, not intended for screening.
- It helps in diagnosing Autism Spectrum Disorder (ASD) and categorizing its severity.
- It classifies children into mild, moderate, or severe categories based on their scores.
- The latest version, CARS-2, correlates directly with DSM-5 criteria, which classifies autism into functional levels (partial dependent, substantial support, very substantial support).
- CARS has been in use since the 1970s and was developed by Schopler.
- CARS-2 includes three basic components:
- Rating booklet with scoring system.
- CARS-2 Standard Version (CARS-2-ST) for individuals under 6 or above 6 with IQ of 79 or lower.
- CARS-2 High Functioning (CARS-2-HF) for individuals aged 6 and above with IQ of 80 or higher (used for Asperger's or PDD-NOS).
- A questionnaire for parents and caregivers to gather information.
- Direct observation by the clinician.
Structure of CARS-2 [00:05:05]
- Both CARS-2-ST and CARS-2-HF consist of 15 items that are rated on a scale of 1 to 4.
- The rating is based on direct observation and information from parents/caregivers.
- Raw scores from these 15 items are summed to form a total raw score.
- This total raw score then determines the autism category (mild, moderate, severe, or no autism symptoms).
- 15 Functional Areas in CARS-2-ST:
- Relating to People
- Imitation
- Emotional Response
- Body Use
- Object Use
- Adaptation to Change
- Visual Response
- Listening Response
- Taste, Smell, and Touch Response and Use
- Fear or Nervousness
- Verbal Communication
- Non-verbal Communication
- Activity Level
- Level and Consistency of Intellectual Response
- General Impression
Advantages of CARS-2 [00:07:49]
- Covers the entire autism spectrum.
- Correlates with DSM-5 functional criteria (Levels 1, 2, and 3).
- Based on decades of use and thousands of individuals.
- Assesses virtually all ages and functional levels (ages 2 years and up).
- Provides concise, objective, and quantifiable ratings based on behavioral observation.
- Scores show a consistent, strong, and specific relationship with autism diagnosis, offering high sensitivity and specificity.
- Provides cutoff scores, standard scores, and percentiles, including T-scores.
- Administration time is typically 15-20 minutes, though it can take longer for new users.
- An average of two scoring sessions is recommended for new clinicians, while experienced clinicians may only need one.
- Prerequisites for scoring: child should be in a comfortable environment, well-fed, and free from acute medical issues (e.g., fever).
Scoring System: 7 Allowable Ratings [00:13:02]
- Ratings range from 1 to 4, with 0.5 increments for intermediate behaviors.
- 1: Within normal limits for that age.
- 1.5: Very mildly abnormal for that age.
- 2: Mildly abnormal for that age.
- 2.5: Mildly to moderately abnormal for that age.
- 3: Moderately abnormal for that age.
- 3.5: Moderately to severely abnormal for that age.
- 4: Severely abnormal for that age.
Key Considerations for Scoring [00:15:08]
- When determining abnormality, consider the child's chronological age, developmental age, and observed behaviors.
- Focus on the following aspects of behavior:
- Peculiarity: The extent to which a behavior is unusual or odd compared to typical development (e.g., stimming, hand flapping, side-cornering).
- Frequency: How often the peculiar behavior occurs during the observation period.
- Intensity: How severe the behavior is (e.g., how lost in their own world the child is).
- Duration: How long the behavior lasts during each episode, and the total duration of all episodes.
Case Example: Michael's CARS-2 ST Ratings [00:17:46]
- Case: Michael, a 4-year-old child.
- Scoring is based on direct observation and caregiver interaction.
Item 1: Relating to People [00:18:19]
- Considerations: Child's reaction to strangers, parents, physical contact (resisting vs. liking affection), attempts required to gain attention, social awareness.
- Michael's Observation: Ignored name, didn't always respond to engagement attempts, initiated interactions for snacks/videos but not play, found it hard to sustain reciprocal interaction or initiate interaction.
- Score: 3 (Moderately abnormal relationship): Requires persistent effort to gain attention, minimal self-initiated contact.
Item 2: Imitation [00:22:55]
- Considerations: Verbal and non-verbal imitation (e.g., clapping, raising hands, singing, rhyming, copying shapes with pencils, cutting with scissors).
- Account for developmental age (e.g., fine motor skills for cutting).
- Michael's Observation: Not watching others, sometimes tried to imitate (50% of time), required persistent help, imitated Play-Doh rolling.
- Score: 3 (Moderately abnormal imitation): Imitates only sometimes, with delay, and requires strong motivation/support.
Item 3: Emotional Response [00:27:34]
- Considerations: Range of emotions, appropriateness of reactions (e.g., laughing at something funny, crying when hurt), responsiveness to others' emotions, and excessive/under-sensitivity to stimuli (e.g., pain).
- Michael's Observation: Narrow range of emotions, showed pleasure in high-interest activities, little change in facial expressions, became upset/cried without clear reason.
- Score: 2 (Mildly abnormal emotional response): Occasionally displays inappropriate emotional responses, sometimes unrelated to surrounding events.
Item 4: Body Use [00:31:52]
- Considerations: Posture, tone, clumsiness, stereotypical movements (head rocking, stimming, head banging, hand flapping, spinning, corner gazing).
- Michael's Observation: Clumsy, but no unusual body movements, rocking, or spinning.
- Score: 1.5 (Very mildly abnormal body use): Some minor peculiarities like clumsiness, but no repetitive movements.
Item 5: Object Use [00:35:25]
- Considerations: How child plays with objects (functional play vs. repetitive/stimming), interest in toys, lining up objects, flushing toilets repeatedly, tapping faucets.
- Michael's Observation: Little interest in toys, no exploration during free play, evaluator showed repetitive play with a toy.
- Score: 3.5 (Moderately to severely abnormal object use): More severe than typical moderate abnormality (score 3), but not extreme. Child showed no interest in toys and engaged in continuous repetitive play.
Item 6: Adaptation to Change [00:39:47]
- Considerations: Resistance to changes in routine, materials, food textures, activities.
- Degree of resistance and effort required to facilitate change.
- Michael's Observation: Actively resisted changes in materials, resisted placing finished materials off table, but was able to shift to a new item in another situation.
- Score: 2.5 (Mildly to moderately abnormal adaptation): Resisted changes in some situations but adapted in others.
Item 7: Visual Response [00:42:51]
- Considerations: Normal eye use, eye contact, avoidance of eye contact, visual stimming (staring at lights/fans, looking from corners of eyes).
- Michael's Observation: Inconsistent eye contact, often not directed at evaluator, distracted by looking at self in mirror, looked at things very closely, often looked from corners of eyes.
- Score: 3 (Moderately abnormal visual response): Requires frequent reminding to look at tasks, avoids eye contact, looks at objects from unusual angles or very close.
Item 8: Listening Response [00:45:51]
- Considerations: Response to name call, reaction to loud/soft sounds, sensitivity to everyday noises (pressure cooker, washing machines, horns).
- Michael's Observation: No immediate response to name call, didn't turn to face person calling, required multiple calls before responding, sometimes no response to unacceptable noises, other times startled by them.
- Score: 2 (Mildly abnormal listening response): Some lack of response or mild overreaction to certain sounds, delayed responses, easily distracted by extraneous sounds.
Item 9: Taste, Smell, and Touch Response and Use [00:49:50]
- Considerations: Excessive avoidance or interest in certain tastes/smells/textures, mouthing inedible objects, tactile issues (touching everything), reactions to pain.
- Michael's Observation: Nothing atypical noted.
- Score: 1 (Within normal limits): Reactions were comparable to typically developing children of similar age.
Item 10: Fear or Nervousness [00:51:50]
- Considerations: Unusual fears (e.g., lack of fear of danger, extreme fear of mild stimuli), nervousness in new situations.
- Michael's Observation: No atypical behavior noted.
- Score: 1 (Within normal limits): Fear and nervousness were within normal limits for his age.
Item 11: Verbal Communication [00:52:56]
- Considerations: Echolalia (immediate and delayed), jargon speech (meaningless words), tone, loudness, volume, and quality of sounds.
- Distinguish between speech (vocabulary) and language (contextual use).
- Michael's Observation: Used 2-3 word meaningful phrases, spontaneous comments, labels, and refusals. Repeated lines from cartoons/videos (echolalia), mixed with jargon.
- Score: 2.5 (Mildly to moderately abnormal verbal communication): Has meaningful speech but also displays echolalia and jargon, placing him between mild and moderate abnormality.
Item 12: Non-verbal Communication [00:56:11]
- Considerations: Ability to meet needs non-verbally (e.g., hand leading, pointing), gestures, facial expressions, understanding others' gestures.
- Michael's Observation: Points to nearby objects to respond to questions, occasionally points to distant objects when excited, no descriptive/emphatic gestures, doesn't look at person when gesturing, doesn't understand others' gestures, unable to read facial expressions.
- Score: 3 (Moderately abnormal non-verbal communication): Inconsistent use of gestures, doesn't understand others' gestures, limited facial expressions.
Item 13: Activity Level [00:58:10]
- Considerations: Hyperactivity vs. lethargy, and the influence of medication.
- Michael's Observation: Mildly restless during assessment, didn't interfere with the process.
- Score: 2 (Mildly abnormal activity level): Mildly restless or somewhat slow, but activity level doesn't significantly interfere with performance.
Item 14: Level and Consistency of Intellectual Response [00:59:26]
- Considerations: Logical thinking and understanding of concepts, not IQ testing.
- Special talents (numbers, music), memory, tendency to take things literally.
- Michael's Observation: Tested intellectual abilities were below average. Could name alphabets, read names, count to 25, identify basic shapes.
- Score: 3 (Moderately abnormal intellectual response): Intellectual functioning is below average for his age, with inconsistencies.
Item 15: General Impressions [01:03:24]
- Considerations: Overall impression of the child based on all 14 items, history, and evaluation.
- Michael's Observation: Language delays, echolalia, repetitive/restricted social interest, limited social reciprocity, repetitive play, resistance to change, difficulty with imitation, unusual play with toys.
- Score: 3 (Moderately abnormal general impression): Displays a number of moderate autism symptoms, but not extreme severity.
Interpreting Total Raw Scores [01:05:03]
Total Raw Score (Michael): 36.5
T-score (Michael): 48 (correlates to 43 in the table based on his total raw score)
Percentile (Michael): 42 (based on his T-score)
Correlation with DSM Functional Levels:
- Children 2-12 years (Total Raw Score / Descriptive Level / Severity Level / DSM-5 ASD Level)
- < 29.5 / Non-autistic / No autism symptoms
- 30-36.5 / Mild to Moderate / Mild-moderate autism symptoms (Level 1-2)
- 37-60 / Moderate to Severe / Moderate-severe autism symptoms (Level 2-3)
- Individuals 13+ years (Total Raw Score / Descriptive Level / Severity Level)
- < 27.5 / Non-autistic / No autism symptoms
- 28-34.5 / Mild to Moderate / Mild-moderate autism symptoms
- 35-60 / Moderate to Severe / Moderate-severe autism symptoms
T-Score Interpretation:
- 70+: Extreme level of autism-related symptoms compared to diagnosed individuals.
- 60-69: Very high level of autism-related symptoms.
- 50-59: High level of autism-related symptoms.
- 40-49: Low level of autism-related symptoms.
- < 40: No autism-related symptoms.
Raw scores reflect symptom severity observed in the individual compared to a clinical sample of individuals with autism-related diagnoses.
CARS-2 provides a reliable and valid tool for evaluating autism spectrum disorder, offering a comprehensive assessment that aligns with current diagnostic criteria. Practical experience and careful observation are crucial for accurate scoring.